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index.html Table of Contents Guest book My Story Links Photo Page

Preemie Links
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Comeunity - Lots of resources for Preemies, Special Needs children and some on adoption as well.  Preemie mailing lists, also.

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After the NICU - A list of advice for when you finally bring baby home.

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Preemie and Premature Baby

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Preemie.org - Preemie Support Site

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Preemie Mom's Page

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Resources for Parents of Preemies - Whether you've just had a preemie or your preemie is older, if you are interested in information on preemies, this is the place to start. Contains an exhaustive listing of resources for parents of preemies currently available. Divided into three sections: General Resources, Conditions and Treatments, a short list for a basic knowledge of prematurity. 

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Preemie Place - Our mission at The Preemie Place is to provide support, encouragement, information and empowerment to the family, friends and caregivers of children born prematurely.

 

Spinal Cord Injury/Spina Bifida Links

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Map of Spinal Column - Picture depicting Segmental spinal Cord level and explaining corresponding Function.

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SpinaBifida.Net offers free information about Spina Bifida, Hydrocephalus, physical disabilities, special needs children, latex allergies, physically challenged teens, folic acid, plus personal stories from people with Spina Bifida.

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Spina Bifida Association

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Spina Bifida.org

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Spina Bifida and Learning Problems

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National Spinal Cord Injury Association - Dedicated to improving care, producing results in research, and addressing everyday living issues that confront all people who use wheelchairs.

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Spinal Cord Injury Resources - a very extensive set of links to various kinds of resources such as research, factsheets, books to buy and mailing lists.

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Circle of Friends - an online community for spinal cord injuries.

 

RGO

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Your New Orthosis

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Outcome Study:  The Progression of Spinal Deformity in Paraplegic Children Fitted with Reciprocating Gait Orthosis

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Pediatric Orthosis - A variety of pediatric Orthosis are illustrated here.

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Study of Energy Consumption of treatment interventions to improve functional mobility.

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Reciprocating Gait Orthosis - pics of a couple different styles.

 

Incontinence

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Mentor Urology, Inc. - provides useful information about bladder control, includes different sections for male, female, pediatric and adolescent.  Also provide a downloadable coloring book and flash cards on self-cathing. 

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Continence explanation of how spina bifida affects bladder/bowel.

 

Wheelchairs

 

Wilm's Tumor Links

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Wilm's Tumor Resources

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Wilm's Tumor Homepages

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Oncolink Pediatric Wilm's Tumor

 

Misc. Other Links

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Linkable.org - Links to the personal websites of PEOPLE who happen to have a disability.

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The National Information Center for Children and Youth with Disabilities

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Parenting a child with special needs:  A guide to readings and resources

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Internet Resources for Special Children (IRSC) - dedicated to communicating information relating to the needs of children with disABILITIES

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Disability Resource

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Special Needs Project Worldwide - Special Needs Project is a place to get books about disabilities. Located in Santa Barbara, California, SNP serves families, professionals, agencies and schools worldwide with the largest, most authoritative collection of disability-related materials.

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NLD on the Web - Information on nonverbal learning disorder.

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Eye Diseases - an extensive set of links to many different eye diseases and conditions.

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Nosebleeds in Children - info on how to treat and causes.

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Siblings of Kids with Special Needs - The Sibling Support Project is a national program dedicated to the interests of brothers and sisters of people with special health and developmental needs.

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Camps for Kids with Special Needs

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Texas Camps for kids with special needs

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KIDSLINKS -  safe sites various funs sites

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Disability Clip Art - Positive images of people with disabilities in everyday-life situations and inclusive settings.

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Special Needs-Special Kids (Disability Awareness) - The objectives of this site include promoting the awareness of children with special needs of all kinds; promoting brighter futures for them and their families; and to provide support and education resources for their families, and those who support them.

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