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I got tired of having everyone ask me the same questions over
and over so I finally just made Kalib a health resume. It has been very
helpful for doctor visits, school personnel and even babysitters. This version
is just the information. Click here
to see the resume in Word format.
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Phone
E-mail
shanblan@hotmail.com
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Current
Conditions
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Spinal
Cord Injury at T11. Left leg
and right foot paralyzed. Wears AFO braces.
Little
or no bladder/bowel control. Diaper
Drainage.
Mobility:
wheelchair or crawling.
Eyes:
Nystagmus, alternating
exotropia, strabismic
amblyopia, wears
glasses.
Allergies
to grasses and molds.
Prone
to nosebleeds. Has benign
heart murmur
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Nicu
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Born
premature on August 11, 1993 at 23 weeks gestation, weight 1 lb. 4 oz.
Born in Tyler, transported to Methodist hospital in Dallas.
During 6 month stay in NICU, suffered numerous problems, including:
Respiratory Distress Syndrome, Bronchopulmonary Dysplasia, apnea,
bradychardia, Retinopathy of prematurity, skin breakdown, several
infections, and more. On respirator for approximately 4 months.
Came home on Jan. 29, 1994.
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Surgeries
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January
1994, repair of bilateral inguinal hernias and repair of left lower
quadrant ventral hernia (Uceda-Methodist) |
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August
1994, Eye surgery to correct strabismus (Weakley-Childrens) |
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April
1995, Bilateral myringotomy (Heaton-UT Tyler) |
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January
1996, Tendon release on left hip, left knee and both heels for
placement in RGO’s and AFO’s (Karol-Scottish Rite) |
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January
1997, Bilateral myringotomy (Heaton-UT Tyler) |
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October
21, 1998, Tendon release on left hip and knee (Karol-Scottish Rite) |
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November
12, 1999, Partial nephrectomy on left side to remove malignant
neoplasm of kidney aka Wilm’s Tumor (Ewalt-Children’s) and
insertion of port-a-cath (Hicks-Children’s) |
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May
18, 2000, Removal of port-a-cath (Hicks-Children’s) |
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August
4, 2000, Eye surgery: RLR
resect and BSO anteriorization tinectomy (Hunter-Tyler Square |
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Hospitalizations
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December
26 – 31, 1994; viral pneumonia, otitis media, sinus infection,
bronchitis (Mother Francis Hospital) |
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December
21 – 23, 1999; viral or bacterial infection of unknown origin
(Children’s Hospital) |
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Medications
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Rhinocourt
nose spray 2x in each nostril one time daily, as needed for allergies.
Claritin
Redi-tab – One a day at bedtime, as needed for allergies.
Guaifed-PD
– 1 tablet twice daily as needed for congestion.
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Physicians
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Pediatrician, Dr. Barbara Huggins, UT Health Center – Tyler, PO
Box 2003, Tyler, TX 75710, (903) 877-7039.
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Spina Bifida Developmental Pediatrician, Dr. Nancy Dodge and Dr.
Richard Adams, Texas Scottish Rite Hospital for Children, Dallas, TX (214)
559-5000
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Pediatric Ophthalmologist, Dr. Jeffrey Hunter, Heaton Eye
Associates, Tyler, TX (903) 534-0444
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Pediatric Oncologist, Dr. Gail Tomlinson, Children’s Hospital,
Dallas, TX (214) 456-7000
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Orthopedic Surgeon, Dr. Karl Rathjen, Scottish Rite Hospital (214)
559-2000
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Urologist, Dr. David Ewalt, Scottish Rite Hospital, (214) 559-2000
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Education
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Enrolled
in Early Childhood Intervention until 3 years old.
PPCD
(Pre-school program for children with disabilities) 1996/97 and 1997/98
(Ms. Goodner)
Now
entering
Special
Education due to physical disability.
Receives
OT and PR, content mastery and resource room.
Requires
Aide for help in toileting.
Possible
Nonverbal Learning Disorder.
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Insurance
Info
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Clarendon
Kids Chip Plan (800)
872-3860
POLICY
# 630-38-9551
GROUP # 200002
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Other
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Blood type 0+. .
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Followed by Dr. Kenneth Shapiro, neurosurgeon, for possibility of
hydrocephalus, Released January 1996
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Chemotherapy: 20-week
regimen of Vincristine and Dactinomycin, November 23, 1999 – March 28,
2000. Wilm’s tumor. Stage 1
removed intact. Caught very
early.
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Kalib needs regular diaper changes as he has little to no feeling
and a small bladder. Bowel
movements – he does know when he has had one but not before he will have
one. He will tell someone he
needs his diaper changed. He
usually has them when he gets active.
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Kalib is not limited to his wheelchair.
If he prefers to crawl, that is fine.
If he wants to sit in a regular classroom chair or on a stool in
the lunchroom, that is fine. Kalib will tell you what he prefers.
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Kalib has nosebleeds from time to time.
They run in our family. It
is NOT cause for alarm. If he
has a nosebleed, lean him forward a little to prevent blood from running
down the back of his throat, and pinch his nostrils shut with a rag or
tissue for a few minutes. Even
after it has stopped, he should try to be calm for a while to prevent his
nose from bleeding again.
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Phone
Numbers
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